Genetic Navigator
I am Tiffany Vickers, the Genetics Navigator for Utah within the Mountain States Regional Genetics Network, also known as MSRGN. My journey into genetics began with my youngest daughter's diagnosis of 22q11.2 Deletion Syndrome and autism, propelling me into this field over two decades ago. This experience has deeply informed my approach and commitment to supporting families like mine. As navigators, we understand that genetic health can be complex. My goal is to guide and support families facing genetic concerns, ensuring they can access the care and information they need.
Please check out our Utah State Team infographic here to see our other projects and accomplishments.
Where is Bear
Our featured project, Where is Bear, is designed to help answer questions about your child or loved one’s developmental delays. For some children, developmental delays can be an early sign of a genetic condition. Where is Bear is a fun book to enjoy with your child while checking that they meet the milestones of a typical two-year-old. View and order developmental books for all ages from the CDC here.
Visit "Act Early. Utah" for more information on recognizing developmental delays.
Local Support and Resources in Utah
Developmental Delay Algorithm
Concerned about developmental progress? This algorithm provides guidance for primary care clinicians in determining the cause of developmental delay, including the initial genetic evaluation.
Ehlers-Danlos Algorithm
Concerned about joint hypermobility or suspecting Ehlers-Danlos syndrome?
What To Do When you Suspect Ehlers-Danlos Syndrome - MSRGN Time 4 Genetics (January 6th, 2022) Webinar w/ Abdallah (Abe) Elias
Enduring continuing education credits (CEUs) available for physicians, nurses, pharmacists, and physician assistants